Currently, the standard of care for newly diagnosed osteosarcoma patients is chemotherapy, methotrexate and surgical removal of the effected bone - nothing new in thirty (30) years...
Bring together data, researchers, patients and families to find new cures for osteosarcoma. Through advocacy, fundraising, education and awareness regarding the disease, we will support new treatment options for patients with this extremely aggressive and often recurring disease.
What We want to Achieve
Collaborate with patient/family, medical, and science communities :
Provide increased funding for Osteosarcoma Research and new treatments
Encourage Genetic testing for all Osteosarcoma patients - changing Standard of Care
Advocate with Surgeons and Pathologists on proper sample collection for bone tumors to be used for successful genetic testing
Act as a clearinghouse for Osteosarcoma genetic information
Advocate for better awareness and understanding of Osteosarcoma
Support families and patients with Osteosarcoma
Partner with medical community to change decades old treatment for Osteosarcoma